Being a parent that is, it's defiantly not for the faint at heart. This week as been trying for me and I think the next several month are not going to get much better, but I know I have much to learn in the area of faith, especially when it comes to my babies, so the Lord gently holds my hand as I put my babies in his lap.
"And Jesus said, 'If you can! All things are possible for one who believes.' Immediately the father cried out and said, 'I believe, help my unbelief!" Mark 9:23-24
Yesterday we went back to our Pediatrician to check out Brenley's lump. We have successfully treated the cradle cap and yet, the lump remains unchanged. So, we have been referred to a surgeon who will look it over and remove it. She is confident that it is a Dermoid Tumor and reassured us that it is a fairly easy removal process, which is comforting.... except when it's your own baby that you will have to watch be in pain.
Lord, I believe, help my unbelief!
On another note, Ryland was diagnosed with Reactive Lung Disease. This is a early childhood form of asthma and does not necessarily mean she will have asthma later in life. What it means for right now is that every time she gets a cold, even those without fever, for her it turns into lungs shutting down and wheezing, mucousy cough for four or five days. Since her bought with RSV just before Christmas she has had three episodes of difficulty breathing where we needed to use her inhaler to help her. The rule of thumb is if she had three episodes in a full year they would treat her with preventative measures and she has has three in less then two months. So, she is now taking a steroid inhaler four times a day until May as well as another inhaler during the times that she is sick to help her lungs stay open. She is also on medicine to help reduce the mucous and ease the coughing. In May we will stop the steroid inhaler and see if she reacts the same during the summer months or if her reactions possibly come at other times in addition to viruses. If she continues to struggle between now and May will will be seen by a Pulmonologist (lung specialist) to monitor her more closely and run further tests.
So for the next several months we have decided as a family to stay at home as much as possible. We will drastically limit her time with other kids, especially in public playing areas or areas where there are a lot of kids we don't know. Since her immune system is so down right now, I would love to just keep her well for more then two weeks at a time. So cabin fever here we come! :)
"Let the peace of Christ rule in your heart" Colossians 3:15
I will walk in this season diligently and know that He has already written the story of my two babies lives. And as my Dad reminded me today, the Lord loves us MORE then I love my babies. My hope does not lay here on earth, but in heaven and my peace rests in the eternity of the cross. ---- much easier to write then live out.
*** On my previous post, you can actually see the lump on Brenley's head. It's about two inches behind her ear and up a little. It's about the size of a pea.
13 hours ago
4 comments:
Just found your blog from your fb update and we will keep your family in our prayers! I don't know all your going through but I know for me I would have such a struggle in my heart between trusting the Lord and wanting to control. You know the truth and I appreciate you sharing! It really is encouraging.
Did they give you an aerochamber? Alorah was first dx'd with reactive airway at 2 after her very own episode of RSV, she has been on pulmicort, flovent, and is now on Advair (which was a hard one to swallow b/c it is a black box med). Vance was dx'd with full-blown asthma at 4 months and he is on flovent. They have both had multiple rounds of Pediapred and we now have a whole kit we take EVERYWHERE we go (neb, steroids, benedryl, albuterol etc). Have they given you a neb? I honestly feel it gives them more then the inhaler does. We use the inhaler when we have to but I would use the neb whenever possible because it just seems to work better. If you ever want to bounce anything off me go for it. Alorah used to take summers off her prevention meds too (Vance still does). Asthma is a hard dx to cope with at first, but when you learn to trust yourself, and you learn how to react to best treat your child it does get better. I still worry when I send her to school and she has mild symptoms but I also know that SHE knows when she needs her meds and that is comforting. If you need a shoulder I'm here hun.
Oh friend, Thank you for sharing all of this. We will be praying for you guys. I know you will be and have likely already been given WAY too much advice, but have you considered seeing a naturopath for Ryland? I have had some friends cut out dairy and do some other things that have REALLY changed the asthma situation for their kids. We are considering this for one of ours too, even though we use raw milk...just a thought! Blessings to you on this journey!
-Kari
I am praying for your family. You can do all things through Christ who strengthens you! I know exactly what you are going through with your Ryland. Just whisper to yourself in those trying moments, "Lord, I know you give my baby every breath she takes and I trust you for the next" I think that clinging to Him is the only way I have gotten through exactly what you are going through. I will pray for your baby girl every single time I give my baby boy his daily meds.
I will also be praying for your littlest treasure!
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