Yesterday we met with a surgen about Brenley's Dermoid Tumor that I wrote about in this
post. He is confident that it is just that, a Dermoid, also called Dermoid Cyst. He thinks we should remove it, but wants to do a CT scan before proceeding. It is located on the left side of her head, about two inches behind her ear, which happens to be fairly close to the second, small soft spot on the back of her skull. He said that when a Dermoid is close to the soft spot or directly on the soft spot it is common that they have roots (tenticales) into the skull and possibly brain. So, he ordered the CT scan to see if that is the case. If it is, then we will be referred to a Neurosurgen. If not, which he feels strongly like there are not roots, then we will proceed with the surgery to remove it.
The CT scan is scheduled for April 6th and I am quite anxious about this day. They said they will give her a sedative to relax her for the procedure, but if she is not still enough they will need to put her under. We will not know until that moment so we need to prepare her as though she will be put under. That means she cannot eat past 4:30am - BRUTAL! Not feeding my baby for over 6 hours will probably be the longest 6 hours of my life! AND we have to go in an hour early to have a dye put in the spot they are looking at... keeping a STARVING baby calm enough to go through a CT scan seems almost impossible to me.
After the scan we will decide how to proceed. IF there are no roots then we can take our time removing it. We can wait as long as we'd like assuming it does not get bigger. I don't know what we will choose at that point. The surgery itself is pretty easy, but yet again she will need to be put under. So, we will be praying for wisdom.
Ryland on the other hand, is doing great. She is still taking her steroid inhaler four times a day, but our goal of keeping her well for a month has worked. It's been almost six weeks and she has not needed her other inhaler at all! We are just about done with staying away from other kiddos, so we will see if her immune system was able to recover AND if the steroid inhaler is working.
Thanks for your prayers. It was actually quite humbling to go into the hospital yesterday. There were SO many other kids there and several babies that were definalty worse off then us. It was a welcomed perspective that the Lord gave me. We are all His children and He does ALL things for His glory. My journey must be about giving Him all of me and not about figuring out how I can help my babies.